The Global Alliance of Partners for Pain Advocacy (GAPPA) invites those living with pain and the family and friends of those living with pain to participate in the My Letter to Pain campaign. This campaign, supported by Novartis, aims to highlight and increase understanding of the different experiences of pain, told from the lived experience of pain perspective, through an online survey and story submission. Those living with pain often report a disconnect while explaining their experience to physicians; this campaign will assist physicians in utilizing their patients’ words to understand their pain, how it impacts their lives, and how they respond to treatment. GAPPA hopes the campaign and stories will:
• Create educational information to help those living with pain.
• Provide individuals the opportunity to tell their stories and express their feelings freely and openly.
• Lead to greater communication between individuals and groups across the pain community.
• Identify directions for future programming and communication efforts.
Each submission remains anonymous unless the submitter chooses to share their details or present.
This campaign aims to bridge the gap between the lived experience of pain and pain research by inviting those with the lived experience to answer a two-part questionnaire.
For more information on how to participate, please visit this website.
We use Submittable to accept and review our submissions.